CMSA Today - Issue 6, 2015 - (Page 12)

Hospice and Palliative Care Optimal Healing Environments in Home Hospice and Palliative Care Discovering What Works and What Doesn't Through a Breakthrough Collaborative BY BoNNiE R. SAKALLARiS, PhD, RN, SANDi GoRDoN, BSC, CPC, and LES C. MEYER, MBA W hen Judi's father, Jack, was nearing the end of his cancer journey, she took it upon herself to take charge. Even though Judi, 52, had a full-time job and commitments with her kids, she felt she "owed" it to her dad to manage his home hospice and palliative care. Jack moved into Judi's modest home - along with all of the equipment necessary to keep him comfortable - and attempted to learn from his care team all that she needed to know. In a matter of weeks, Judi was overwhelmed with all that life was tossing her way. Her kids were out of control. Her boss was losing patience. She was a wreck. And most importantly, Judi was at a loss as to how to help relieve her father's suffering. It's at the end of life, or in the face of significant pain or distress, when patients can benefit most from the type of care and surroundings that encourage the mind, body, and spirit to connect. The cohesion resulting from this connection promotes peace and serenity - allowing healing to occur, even when cure is not possible. Perhaps it's the small things that make a difference in how a patient feels... a view of the garden, family photos within sight, or the lingering of a specific scent. Maybe it's learning to imagine a positive outcome, mending a sour relationship, or enjoying family, food, and love. BaBY BOOmErs dirECting CHangE OnCE again The tsunami of baby boomers working and caring for a spouse or parent with advanced illness is of increasing concern to both employers and our health care system. These consumers are savvy. They fiercely research the best solutions and bird dog anyone who can positively affect outcomes. With 73 percent of caregivers working outside the home while providing care to a family member in the home, 12 CMSA TODAY Issue 6 * 2015 the burden surely impacts everyone up and down the line - from children of caregivers to their employers.1 "The need for essential high-value palliative care and home hospice supportive services in our communities to relieve the suffering of patients and families living with advanced illness is greater than ever," said Cheri A. Lattimer, RN, BSN, executive director, Case Management Society of America. "Palliative care offers a key pathway to enable meaningful dialogues vital to patient-directed engagement goals and care-experience outcomes - objectives critical for assuring the appropriate use of advanced care coordination supportive care services." imprOving tHE vaLuE Of CarE in tHE COmmunitY The expected surge in the home hospice and palliative care sector promises to be a great opportunity for providers. However, with the anticipated reimbursement restructuring, these companies are at financial risk unless they educate themselves on rulings about to take effect while learning ways to deliver better care to reduce costs - i.e., hospital readmissions. Simply adding more resources will not result in better health or better care for these patients and families. Growth in advanced illness care is evidenced by the 74 percent increase in the number of patients served by hospice and palliative care organizations over the last 10 years.2 In addition to monumental numbers of the elderly with advanced illness, it is estimated that 66 million Americans are care partners for their loved ones.3 Home hospice and palliative care providers are tasked with patient care and support of care partners. These care partners provide more than 90 percent of care which, if not provided by them, would cost the health "Finding ways to train and support care partners and reduce the burdens of care giving is part of "the ask" for continued fiscal reimbursement. Ensuring that we are improving the experience of care will ensure that hospice and palliative care organizations receive funding to continue their work."

Table of Contents for the Digital Edition of CMSA Today - Issue 6, 2015

Post-Traumatic Growth: The Journey
Optimal Healing Environments in Home Hospice and Palliative Care
Successful Patient Engagement in an Employer-Based Wellness Program

CMSA Today - Issue 6, 2015