CMSA Today - Issue 6, 2016 - 13

Palliative Care to combine pain and symptom management with emotional and spiritual support as part of a holistic approach. Angela's palliative care team also offered support to her family. "They were actually letting my mom see a counselor, too," Angela says. "And I know with the medication and the doctors and my counseling-that does give me hope." She is now more involved with her family, able to socialize again and volunteer with her nieces' sports teams because of palliative care.1 high-vaLUE pERSoNaLizEd CaRE SUppoRt "Palliative care offers a key pathway to enable meaningful dialogues vital to patientdirected engagement goals and careexperience outcomes," said Cheri Lattimer, RN, BSN, chief policy officer, Case Management Society of America. "I believe that healthcare providers who commit to open dialog with their patients and family caregivers about both traditional and alternative care options build stronger patient engagement, trust and satisfaction in a healthcare system that often appears to ignore patient preference and their desire for personalized care support." Personalized care support (PCS) helps patients and families manage the challenges associated with vital "life span" developments and real-time "health span" work-life activities of daily living and quality-of-life issues. It focuses on the unique needs of the patient, as well as their families, caregivers and work associates, to empower the science of mindbody-health-wellbeing and support patient independence, quality-of-life restoration, preservation of life and care preferences. 2 When viewed together, they seek to optimize the Quadruple Aim: 1) Better health for the population; 2) Better care for individuals; 3) Lower cost through improvement; and 4) Better value of care in the community. In other words: the ability to realize living life to its fullest-regardless of life stage. "Palliative care is the future of medicine," predicted Diane e. Meier, MD, vice chair and professor, department of geriatrics and palliative medicine, Icahn School of Medicine at Mount Sinai, and Director, Center to Advance Palliative Care (CAPC). "Palliative care sees the person beyond the disease."3 She said quality palliative care achievement is clearly about improving access to palliative care for all seriously ill people, which requires that every clinician have basic skills in pain and symptom management and is in communication about what is most important to patients and their families. Meier continued, "Patients must be able to find the same high-quality palliative care expertise wherever they happen to be... at home, in their doctor's office, in a nursing home, a cancer center or a dialysis unit. Need should determine access-whatever the setting, stage of disease or diagnosis."4 ENd-oF-LiFE CaRE oFtEN ovERLookS patiENt pREFERENCE Atul Gawande, MD, MPH, author, journalist, executive director of Ariadne Labs and surgeon at Brigham and Women's Hospital in Boston, believes "medicine and society have failed to recognize that people have priorities in their lives besides just living longer." Dr. Gawande provided key testimony at recent Senate Special Committee on Aging hearings focused on how patient preferences are often ignored in end-of-life care and the difficulties patients have receiving the kind of care they want.5 "We have very strong evidence that when people get to articulate their care goals, besides just survival, they end up with care that is remarkably better on almost every dimension: suffering and well-being, overall physical function, costs, and also their length of life. Studies of terminally ill patients have shown that only one in three clinicians ask patients about their goals in the last stages of life," stated Dr. Gawande. After the hearing, Sen. Sheldon Whitehouse (D-RI) said he plans to introduce a new bill that would revise Medicare's hospice eligibility requirements so that people who choose hospice care can still receive curative care. This bill would also give the Centers for Medicare & Medicaid Services a chance to test pilot programs in palliative and hospice care. BRiNgiNg thE vaLUE oF paLLiativE CaRE to LiFE Advances in medical treatment and population health initiatives have contributed to increased life expectancy. As the population ages, chronic conditions have become the main cause of death for individuals over the age of 65.6 Chronic disease can have a broad range of adverse consequences, including social isolation, pain, anxiety, depression and impaired functioning. The availability and use of services to improve the quality of life for individuals with chronic or life-limiting illness have not kept pace with emerging enabling technology advances that contribute to greater longevity. The truth is that none of us knows how much time we have left. So how can we live today in the best way possible? Rocker Jon Bon Jovi nailed it in 2000 when he sang: "I just want to live while I'm alive." There is no doubt that when you take it to the next level, PCS quality-of-life restoration and living-well achievement are linked. When those individual life experience connections are intact and in balance, people will achieve a better quality of life. a diStiNgUiShEd pRoFESSoR oF MaRkEtiNg'S pERSpECtivE oN paLLiativE CaRE iNNovatioN I asked Leonard Berry, PhD, a professor at Texas A&M University's Mays Business School, about his recent collective impact research on palliative care. His innovative approach to palliative care, which helps patients and families manage serious illness-related worklife activities of daily living and quality-of-life issues, drives individual-directed engagement while optimizing patient outcomes to sustain community-based, Quadruple Aim collective impact results. Q. What iS thE RoLE oF paLLiativE CaRE? Leonard Berry - I view palliative care as an integral component of the curative treatment a seriously ill patient might be receiving. This type of care supplements the primary treatment, helps manage symptoms, pain and/or side effects from treatment. It's also about working with the patient and family on a variety of related issues that can impede recovery. Q. WhY iS paLLiativE CaRE iMpoRtaNt? Leonard Berry - I see a primary benefit of well-executed palliative care as relieving suffering, which can include physical, Issue 6 * 2016 CMSA TODAY 13

Table of Contents for the Digital Edition of CMSA Today - Issue 6, 2016

Patient-Centered Care
Association News
CMSA Corpo rate Partners
On Living Well: The Life-Transforming Power of Palliative Care
Improving Medications Access for Bone Marrow Transplant Patients
Breaking Down Silos & Strengthening Hospital Care Coordination
Cultivating the Art and Science of Compassionate Care
Index of Advertisers
CMSA Today - Issue 6, 2016 - cover1
CMSA Today - Issue 6, 2016 - cover2
CMSA Today - Issue 6, 2016 - 3
CMSA Today - Issue 6, 2016 - 4
CMSA Today - Issue 6, 2016 - 5
CMSA Today - Issue 6, 2016 - Patient-Centered Care
CMSA Today - Issue 6, 2016 - 7
CMSA Today - Issue 6, 2016 - Association News
CMSA Today - Issue 6, 2016 - 9
CMSA Today - Issue 6, 2016 - 10
CMSA Today - Issue 6, 2016 - CMSA Corpo rate Partners
CMSA Today - Issue 6, 2016 - On Living Well: The Life-Transforming Power of Palliative Care
CMSA Today - Issue 6, 2016 - 13
CMSA Today - Issue 6, 2016 - 14
CMSA Today - Issue 6, 2016 - 15
CMSA Today - Issue 6, 2016 - 16
CMSA Today - Issue 6, 2016 - 17
CMSA Today - Issue 6, 2016 - Improving Medications Access for Bone Marrow Transplant Patients
CMSA Today - Issue 6, 2016 - 19
CMSA Today - Issue 6, 2016 - 20
CMSA Today - Issue 6, 2016 - Breaking Down Silos & Strengthening Hospital Care Coordination
CMSA Today - Issue 6, 2016 - 22
CMSA Today - Issue 6, 2016 - 23
CMSA Today - Issue 6, 2016 - Cultivating the Art and Science of Compassionate Care
CMSA Today - Issue 6, 2016 - 25
CMSA Today - Issue 6, 2016 - Index of Advertisers
CMSA Today - Issue 6, 2016 - cover3
CMSA Today - Issue 6, 2016 - cover4
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