CMSA Today - Issue 7, 2016 - 29


Patient Perspective
at the University of Miami. She helped my
husband explain the decision to the treating
physician that we wanted to have another
opinion with the doctor at the University of
Miami. As a result, I was discharged and seen
the next day by the neurosurgeon. Immediately
after the initial evaluation, a biopsy was
scheduled to determine the pathology of the
tumor. Once the pathology report was received,
the neurosurgeon referred to a hematologist
who specialized in the type of cancer that I had.
As my condition was serious, I was started on
aggressive chemotherapy right away.
I was lucky that the tumor was receptive to
the chemotherapy, and after the third round
of chemo, the tumor was gone according
the MRI. The plan of care was to continue the
chemotherapy regime, which was administered
on an inpatient basis every two weeks for the
next eight weeks. As the chemo continued
to do its work, I became more alert over
time, but the treatment took its toll on me
physically and mentally. Eventually I was able
to absorb what was going on around me and
was grateful to my husband, who was by my
side every step of the journey. I also realized
that I had many people praying and sending
positive thoughts, and I am forever grateful.
Once chemo was completed, I realized how
weak I was and asked my doctor if he thought
rehabilitation would help. He agreed, and I
called a case management colleague at a Health
South facility near my home. She expedited
an appointment with the medical director.
He evaluated me and agreed that inpatient
rehabilitation was needed, so I was admitted for
aggressive rehab. The expertise of my therapy
team helped me gain strength and confidence.
Over the next few months, I have continued
to recuperate and gain strength. I did have
complications from the chemo, which have
impacted my ability to walk, but with braces
and the use of a cane/walker, I am adapting
and doing more and more on my own. I am
grateful that my tumor remains in remission.
My journey as a patient has taught me that
being a patient is the hardest, loneliest and
scariest experience of my life. I realized that
every patient needs an advocate when he or
she enters the healthcare system, as it is almost
impossible to comprehend what is going on
when you are sick and faced with mounting
challenges. Whether it is a family member or

paid advocate, having a second set of eyes
and ears is critical. My husband was with
me every step of the way. He talked to
the team, asked questions, challenged
decisions and made decisions on my
behalf. He saved me from medical errors
and made sure I was safe. He helped me
move from the bed to the chair, to the
bathroom when I was too weak to do it
myself and the staff was busy doing their
work. He kept in touch with Marilyn and
listened to her advice and guidance. Prior
to each admission, I had to have lab work
and see my hematologist. On those visits
we would see people alone and wonder
how they did it.
I learned invaluable lessons as a patient,
and it has helped me see the healthcare
system from a different view as a case
manager. I realized the system is set up "for
the system," and the patient has to learn how
to adapt to the system. This was not easy for
me as a seasoned healthcare professional,
so I can only image how it is for the average
person. The main person missing from my
care in the acute care setting was a case
manager. This was disappointing to me as
I wondered why I was not assigned a case
manager. Wasn't I sick enough?
As I transition back to working
professional case manager, I have set new
goals for myself. One is to find a way to
help consumers and their caregivers to
better understand their role and help them
to better navigate the complex healthcare
system. To do this, I started a blog called
Nurse Advocate. The blog delivers
information based on my own experiences
and provides tips and resources readers
can use to take an active role in their
care. In addition, the posts are written to
help all members of the healthcare team
understand the challenges patients have
and the importance of being sensitive to
the individual needs of each patient. The
process has been received well by those
who read the blog and therapeutic for me
as I continue to move forward.
Anne Llewellyn, RN-BC, MS,
BHSA, CCM, CRRN, is currently a
nurse. To contact Anne, email her at
allewellyn5@bellsouth.net.

MARGARET (PEGGY) LEONARD,
MS, RN-BC, FNP

M

ost of us are familiar with
Sesame Street's Kermit the Frog's
famous line, "It is not easy being
green." Well, for a seasoned registered
nurse, family nurse practitioner and case
manager, "it is not easy being the patient."
Although the learnings from being a patient
for a protracted period of time are unique,
enlightening and invaluable, it still is not
easy being green.
My story began last June when I was
diagnosed with Stage III C plus Colon Cancer.
Metastatic cancer with involvement of 6-8
nodes. I had 9 nodes involved. First, as any
of us might expect, I was in shock and then
in disbelief; next, I was overwhelmed and
finally, devastated. Thank God for my husband
Ron, who held me as we both cried about
all the good times, tried to laugh about the
not so good times and anguished about our
future. God has also blessed me with loving
children, caring family members, friends
and colleagues. This seasoned healthcare
professional became totally dependent on
someone else: my case manager and my
daughter, Denise. She did it all, even though
her only training for this role was her love,
dedication, great poise, organizational and
people skills and common sense. She was my
voice. Thank goodness, because while there
are so many excellent and skilled licensed and
unlicensed caregivers in my story, there was
no one person who stepped up to the plate
and help me put it all together. I would be
remiss if I didn't mention that unfortunately
there were also some folks in my story who
clearly had chosen the wrong profession.
Issue 7 * 2016 * DIGITAL

CMSA TODAY

29



Table of Contents for the Digital Edition of CMSA Today - Issue 7, 2016

PRESIDENT’S LETTER
ASSOCIATION NEWS
CMSA CORPORATE PARTNERS
Are You Culturally Competent?
Return to Culture – Return to Healing
Appalachian Culture: A Guide for Case Managers
Professional Case Management’s Ethical Quartet for 2017: Part 1, Workplace Bullying and End of Life Care
Diversity of Role Reversal: When the Case Manager Becomes the Patient
INDEX OF ADVERTISERS
CMSA Today - Issue 7, 2016 - cover1
CMSA Today - Issue 7, 2016 - cover2
CMSA Today - Issue 7, 2016 - 3
CMSA Today - Issue 7, 2016 - 4
CMSA Today - Issue 7, 2016 - 5
CMSA Today - Issue 7, 2016 - PRESIDENT’S LETTER
CMSA Today - Issue 7, 2016 - 7
CMSA Today - Issue 7, 2016 - 8
CMSA Today - Issue 7, 2016 - 9
CMSA Today - Issue 7, 2016 - ASSOCIATION NEWS
CMSA Today - Issue 7, 2016 - 11
CMSA Today - Issue 7, 2016 - CMSA CORPORATE PARTNERS
CMSA Today - Issue 7, 2016 - 13
CMSA Today - Issue 7, 2016 - Are You Culturally Competent?
CMSA Today - Issue 7, 2016 - 15
CMSA Today - Issue 7, 2016 - Return to Culture – Return to Healing
CMSA Today - Issue 7, 2016 - 17
CMSA Today - Issue 7, 2016 - 18
CMSA Today - Issue 7, 2016 - 19
CMSA Today - Issue 7, 2016 - Appalachian Culture: A Guide for Case Managers
CMSA Today - Issue 7, 2016 - 21
CMSA Today - Issue 7, 2016 - 22
CMSA Today - Issue 7, 2016 - Professional Case Management’s Ethical Quartet for 2017: Part 1, Workplace Bullying and End of Life Care
CMSA Today - Issue 7, 2016 - 24
CMSA Today - Issue 7, 2016 - 25
CMSA Today - Issue 7, 2016 - 26
CMSA Today - Issue 7, 2016 - 27
CMSA Today - Issue 7, 2016 - Diversity of Role Reversal: When the Case Manager Becomes the Patient
CMSA Today - Issue 7, 2016 - 29
CMSA Today - Issue 7, 2016 - 30
CMSA Today - Issue 7, 2016 - 31
CMSA Today - Issue 7, 2016 - 32
CMSA Today - Issue 7, 2016 - 33
CMSA Today - Issue 7, 2016 - INDEX OF ADVERTISERS
CMSA Today - Issue 7, 2016 - cover3
CMSA Today - Issue 7, 2016 - cover4
http://www.nxtbook.com/naylor/CMSQ/CMSQ1118
http://www.nxtbook.com/naylor/CMSQ/CMSQ0417
http://www.nxtbook.com/naylor/CMSQ/CMSQ1417
http://www.nxtbook.com/naylor/CMSQ/CMSQ0317
http://www.nxtbook.com/naylor/CMSQ/CMSQ1317
http://www.nxtbook.com/naylor/CMSQ/CMSQ0217
http://www.nxtbook.com/naylor/CMSQ/CMSQ1217
http://www.nxtbook.com/naylor/CMSQ/CMSQ0117
http://www.nxtbook.com/naylor/CMSQ/CMSQ1117
http://www.nxtbook.com/naylor/CMSQ/CMSQ0416
http://www.nxtbook.com/naylor/CMSQ/CMSQ1416
http://www.nxtbook.com/naylor/CMSQ/CMSQ0316
http://www.nxtbook.com/naylor/CMSQ/CMSQ1316
http://www.nxtbook.com/naylor/CMSQ/CMSQ0216
http://www.nxtbook.com/naylor/CMSQ/CMSQ1216
http://www.nxtbook.com/naylor/CMSQ/CMSQ0116
http://www.nxtbook.com/naylor/CMSQ/CMSQ1116
http://www.nxtbook.com/naylor/CMSQ/CMSQ0415
http://www.nxtbook.com/naylor/CMSQ/CMSQ1415
http://www.nxtbook.com/naylor/CMSQ/CMSQ0315
http://www.nxtbook.com/naylor/CMSQ/CMSQ1315
http://www.nxtbook.com/naylor/CMSQ/CMSQ0215
http://www.nxtbook.com/naylor/CMSQ/CMSQ1215
http://www.nxtbook.com/naylor/CMSQ/CMSQ0115
http://www.nxtbook.com/naylor/CMSQ/CMSQ1115
http://www.nxtbook.com/naylor/CMSQ/CMSQ0414
http://www.nxtbook.com/naylor/CMSQ/CMSQ1414
http://www.nxtbook.com/naylor/CMSQ/CMSQ0314
http://www.nxtbook.com/naylor/CMSQ/CMSQ1314
http://www.nxtbook.com/naylor/CMSQ/CMSQ0214
http://www.nxtbook.com/naylor/CMSQ/CMSQ1214
http://www.nxtbook.com/naylor/CMSQ/CMSQ0114
http://www.nxtbook.com/naylor/CMSQ/CMSQ1114
http://www.nxtbook.com/naylor/CMSQ/CMSQ0413
http://www.nxtbook.com/naylor/CMSQ/CMSQ1413
http://www.nxtbook.com/naylor/CMSQ/CMSQ0313
http://www.nxtbook.com/naylor/CMSQ/CMSQ1313
http://www.nxtbook.com/naylor/CMSQ/CMSQ0213
http://www.nxtbook.com/naylor/CMSQ/CMSQ1213
http://www.nxtbook.com/naylor/CMSQ/CMSQ0113
http://www.nxtbook.com/naylor/CMSQ/CMSQ1113
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0412
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1412
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0312
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1312
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0212
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1212
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0112
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1112
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0411
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1411
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0311
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1311
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0211
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1211
http://www.nxtbook.com/nxtbooks/naylor/CMSQ0111
http://www.nxtbook.com/nxtbooks/naylor/CMSQ1111
http://www.nxtbookMEDIA.com