Hemophilia Daily - Monday, July 9, 2012 - (Page 1)
HEMO PHILIA DAILY
The official newspaper of the 2012 WFH World Congress
www.wfh.org
MONDAY, JULY 9, 2012 • PARIS
Opening Ceremony kicks off 50th campaign
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he WFH 2012 World Congress “Holding a World Congress is truly a Opening Ceremony took on a great honour for the host country,” said special meaning this year with the Mr. Henry. “The WFH 2012 World Conth launch of the WFH’s 50 anniversary and gress will also celebrate the jubilee of the its Close the Gap campaign. Delegates World Federation of Hemophilia, adding were treated to a memorable ceremony to the symbolic force of this Congress for that highlighted the French HemoThe goal of the campaign the tremendous philia Society.” progress made over is to raise $5 million to help During the Openthe last 50 years. close the gap between those ing Ceremony, the Congress president who have access to care and WFH premiered Mr. Norbert Ferré, those who do not. the film “The Winhonorary Conning Coalition”, gress president Mr. which highlights Edmond-Luc Henry, World Federation of the full impact of the WFH and its global Hemophilia (WFH) president Mr. Mark partnerships. W. Skinner, medical program co-chair The WFH also announced its three-year Prof. Claude Négrier, and a representafundraising campaign to help mark this tive of the French Republic Dominique important anniversary. The goal of the Bertinotti, junior minister for families, campaign is to raise $5 million to help welcomed the global bleeding disorders community to the XXX International Congress. Continued on page 4
Delegates gather at Sunday night’s Opening Ceremony.
Welcome to Paris!
ienvenue à Paris and the WFH 2012 World Congress. This year marks the launch of the WFH’s th 50 anniversary celebrations. In recognition of this landmark, the 2012 Congress will not only focus on cutting-edge scientific research, but will also highlight the history of hemophilia and pay tribute to the many people who have enhanced our knowledge on the treatment of inherited bleeding disorders worldwide. We expect more than 5,000 delegates from over 130 countries to be in atten-
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dance this year. Joining them in the City of Lights will be WFH luminaries Mark W. Skinner, WFH president from 20042012; Brian O’Mahony, WFH president Continued on page 4
WFH president challenges current models of care to meet global needs
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Today at a glance
15:45 – 16:30 Poster viewing (level 3). 16:30 – 18:00 International Hemophilia Training Centres: The fellowship experience (room 251). 10:00 – 16:30 WFH Resource Centre (level 2). Obtain many of our printed resources, browse the revamped WFH website, and speak to a WFH staff member directly. Fundraising activities will be organized daily.
peaking at the opening session of the World Federation of Hemophilia’s 2012 World Congress today at 10:45 a.m. in the Grand Amphitheatre, president Mark W. Skinner will be evaluating current practices and models for treating hemophilia and related bleeding disorders, which affect one in 1,000 people worldwide. Treatment has come a long way since 1963, when the World Federation of Hemophilia (WFH) was founded, he says. “We are on the cusp of a new revolution in treatment,” with breakthroughs on all fronts over the next few years, ranging from biosimiliars, longer lasting products, and the real prospect of a cure through gene therapy.
WFH president Mark W. Skinner According to Mr. Skinner now is the time to rethink current definitions of optimal care and to adopt a new 21st Continued on page 4
This issue of Hemophilia Daily is sponsored by Inspiration Biopharmaceuticals.
http://www.wfh.org
Table of Contents for the Digital Edition of Hemophilia Daily - Monday, July 9, 2012
Hemophilia Daily - Monday, July 9, 2012
Hemophilia Daily - Monday, July 9, 2012 - (Page 1)
Hemophilia Daily - Monday, July 9, 2012 - (Page 2)
Hemophilia Daily - Monday, July 9, 2012 - (Page 3)
Hemophilia Daily - Monday, July 9, 2012 - (Page 4)
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