NewsLine - March 2012 - (Page 16)
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The Experience Model
By Mary J. Labyak, MSSW, LCSW
As this month’s feature, NewsLine is republishing the landmark article, “The Experience Model,” written by Suncoast Hospice President/ CEO, Mary Labyak, who died on February 4, 2012. While written in 2001, providers still embrace this model and continue to request copies of the article—testament to Mary’s lifelong impact as a hospice leader.
N
o one would argue that each patient, family and community member who seeks services from a hospice or palliative care provider deserves the best we can offer them. People who need our support are often in the midst of a heartwrenching journey for which they have received no preparation or guidance. As end-of-life providers we usually have only one opportunity to ensure that the experiences of these patients and families meet their unique needs. Palliative care providers are also challenged to meet the growing expectations of people familiar with our services. Twenty years ago patients and families were happy simply to have someone to call, and to receive basic pain and symptom management, and acknowledgement of their grief. Today’s consumers know the incredible support and services that palliative care teams provide and frequently express a desire for “that medicine my neighbor had.”
Successful current and future models of hospice and palliative care will honor what we have learned from those we have served. When staff and volunteers at all levels of the organization focus on the experiences of patients, families and community members, we foster an organizational culture in which our services are based on the unique values, end-of-life goals and wishes of each person we serve. As reflected in The Quest to Die with Dignity: An Analysis of Americans’ Values, Opinions and Attitudes Concerning End-of-life Care, people tend to see the last phase of life as one of awaiting death, with the hope for some measure of comfort while not being a burden to others. These perceptions about the end of life can be transformed into a more meaningful journey through quality palliative care that honors each individual’s values and goals.
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Table of Contents for the Digital Edition of NewsLine - March 2012
NHPCO Facts and Figures
In Tribute to Mary Labyak
Fall Prevention and Assessment
The Voice of NCHPP
The Experience Model
Get Involved in My.NHPCO
NHF 2012 Gala (display ad)
Hope PACE
Free Community Assessment Tool
Watch the New FHSSA Video on Partnering
NHDD is April 16: Let’s Keep Up the Pace
MSN Change: Over a Year of Advocacy Pays Off
New Volunteer Outreach Materials Online
Our New Hospice T-Shirts are Here
Volunteer Gift Items from Marketplace (display ad)
Member News and Notes
Regulatory Tip of the Month
Educational Offerings
Resource Links to Bookmark
Videos Worth Watching
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