NHPCO NewsLine Summer 2018 - 19
HASLINGER FAMILY PEDIATRIC
PALLIATIVE CARE CENTER, AKRON
2012
CHILDREN'S HOSPITAL, AKRON, OHIO
Lauren Gartner, like many 10-year-olds, loved to draw, and it was the most
fun when she could make pictures with her best friend, Maddy. Unlike other
kids, however, Lauren had a tumor that would ultimately shorten her life.
"Her hospital room was lit up with her art work," recalls William Considine,
CEO of Akron Children's Hospital, where she spent much of her six-month
illness. "She had such a positive energy and spirit that inspired all of us."
That spirit also inspired the palliative care program to build on Lauren's love of
creativity to create a special place where children and families can experience
holistic healing through the arts. The result, eight years later, is a new, colorful,
sunny 3,000-square-foot space called the Expressive Therapy Center, built with
the support of a major donor, Emily Cooper Welty. Children and families can
use its resources there or in a patient's room. "Sometimes they'll just take
something out and play while they're talking," explains Marlene Hardy-Gomez,
a nurse practitioner on the hospital's palliative care team.
The center is just one part of a comprehensive palliative care program at
Akron Children's, which was created and developed by Sarah Friebert, M.D.,
a pediatric hematologist/oncologist and palliative medicine physician.
Friebert is credited with evangelizing the cause of palliative care so
effectively that the hospital now has one of the nation's leading pediatric
palliative care programs after just 10 years.
But what we also
need to be doing
is reducing the
fragmentation of
medical care...
"We built a community-based model that recognizes children in the hospital
need palliative care," says Friebert. "But what we also need to be doing is
reducing the fragmentation of medical care," she adds, "and getting them
back to where they want to be - in the community."
The program offers in-hospital consults but much of the care takes place in
other settings through connections with home care and hospice agencies,
schools, and long-term care facilities scattered around 44 of Ohio's 88
counties. "We drive a lot," says Friebert.
Akron Children's is a training site for other organizations seeking specialty
training and guidance on developing palliative programs. Its fellowship
program feeds research, and everyone on the palliative care team is expected
to undertake research projects. "Because of our large volume of patients, we
are sitting on a mountain of data," says Friebert. "The Expressive Therapy
Center gives us a laboratory to test interventions that will be helpful to
families." The center studies family stress, bereavement, and what happens
during transitions when children move into adult medical care.
Summer 2018 | NHPCO NewsLine
19
Table of Contents for the Digital Edition of NHPCO NewsLine Summer 2018
Table of Contents
2018 MLC Thank you (display ad)
Message from Edo
My Hospice Campaign
My Hospice Message Pillars
My Hospice Video
My Hospice Sponsor Acknowledgment
My Hospice on Capitol Hill
Circle of Life Award
Marketplace (display ad)
Supporting Children and Families
2018 Virtual Conference (display ad)
Pediatric Spotlight
Professional Development in 2018
2018 IDC (display ad)
Stay With Me Awhile
National Consensus Project (display ad)
Short Takes section
Palliative Care Spotlight
Diversity Council Spotlight
Content Licensing (display ad)
Council of States Spotlight
Career Center (display ad)
Member News
In Memorium
News from NHF
State Hospice Profiles (display ad)
News from We Honor Veterans
Pet Peace of Mind (display ad)
Heartland Hospice Memorial Fund (display ad)
Online Resources
NHPCO NewsLine Summer 2018 - Intro
NHPCO NewsLine Summer 2018 - 1
NHPCO NewsLine Summer 2018 - Table of Contents
NHPCO NewsLine Summer 2018 - 3
NHPCO NewsLine Summer 2018 - 2018 MLC Thank you (display ad)
NHPCO NewsLine Summer 2018 - Message from Edo
NHPCO NewsLine Summer 2018 - My Hospice Campaign
NHPCO NewsLine Summer 2018 - 7
NHPCO NewsLine Summer 2018 - 8
NHPCO NewsLine Summer 2018 - My Hospice Message Pillars
NHPCO NewsLine Summer 2018 - My Hospice Video
NHPCO NewsLine Summer 2018 - My Hospice Sponsor Acknowledgment
NHPCO NewsLine Summer 2018 - My Hospice on Capitol Hill
NHPCO NewsLine Summer 2018 - 13
NHPCO NewsLine Summer 2018 - Circle of Life Award
NHPCO NewsLine Summer 2018 - 15
NHPCO NewsLine Summer 2018 - 16
NHPCO NewsLine Summer 2018 - 17
NHPCO NewsLine Summer 2018 - 18
NHPCO NewsLine Summer 2018 - 19
NHPCO NewsLine Summer 2018 - 20
NHPCO NewsLine Summer 2018 - Marketplace (display ad)
NHPCO NewsLine Summer 2018 - Supporting Children and Families
NHPCO NewsLine Summer 2018 - 23
NHPCO NewsLine Summer 2018 - 24
NHPCO NewsLine Summer 2018 - 25
NHPCO NewsLine Summer 2018 - 26
NHPCO NewsLine Summer 2018 - 2018 Virtual Conference (display ad)
NHPCO NewsLine Summer 2018 - Pediatric Spotlight
NHPCO NewsLine Summer 2018 - 29
NHPCO NewsLine Summer 2018 - Professional Development in 2018
NHPCO NewsLine Summer 2018 - 31
NHPCO NewsLine Summer 2018 - 32
NHPCO NewsLine Summer 2018 - 33
NHPCO NewsLine Summer 2018 - 34
NHPCO NewsLine Summer 2018 - 35
NHPCO NewsLine Summer 2018 - 36
NHPCO NewsLine Summer 2018 - 2018 IDC (display ad)
NHPCO NewsLine Summer 2018 - Stay With Me Awhile
NHPCO NewsLine Summer 2018 - National Consensus Project (display ad)
NHPCO NewsLine Summer 2018 - Short Takes section
NHPCO NewsLine Summer 2018 - 41
NHPCO NewsLine Summer 2018 - 42
NHPCO NewsLine Summer 2018 - 43
NHPCO NewsLine Summer 2018 - Palliative Care Spotlight
NHPCO NewsLine Summer 2018 - 45
NHPCO NewsLine Summer 2018 - Diversity Council Spotlight
NHPCO NewsLine Summer 2018 - Content Licensing (display ad)
NHPCO NewsLine Summer 2018 - Council of States Spotlight
NHPCO NewsLine Summer 2018 - Career Center (display ad)
NHPCO NewsLine Summer 2018 - Member News
NHPCO NewsLine Summer 2018 - 51
NHPCO NewsLine Summer 2018 - 52
NHPCO NewsLine Summer 2018 - In Memorium
NHPCO NewsLine Summer 2018 - News from NHF
NHPCO NewsLine Summer 2018 - State Hospice Profiles (display ad)
NHPCO NewsLine Summer 2018 - News from We Honor Veterans
NHPCO NewsLine Summer 2018 - Heartland Hospice Memorial Fund (display ad)
NHPCO NewsLine Summer 2018 - Online Resources
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