NHPCO NewsLine Summer 2019 - 30

EOL
Doula
Spotlight

End of Life Doula Council to Research
the Benefits of Doula Care
Research into the impact of End of Life Doulas (EOLDs) on the dying
and their families is underway in several places around the world. No
results have been published yet. In the meantime, we have anecdotal
evidence from hospice programs that use EOLDs, which shows that
patient and family experiences have been universally quite positive.
To further understand the role and benefits of EOLDs, the NHPCO's
End of Life Doula Council has decided to conduct its own informal
survey. This survey will provide some preliminary information on the
utilization and benefits of EOLD services in the United States. It will go
to families that have used EOLDs in the past as well as families
currently using them.
The survey will include both quantitative measures and narrative
information. The council decided that a survey consisting of scaled
data, short answers, and narrative questions will allow for the widest
variety of responses. This will help the Council understand why families
choose doulas, and to establish how well the outcomes of doula care
match the reasons families made that decision. It will also provide
hospices, palliative care programs, and the general public invaluable
data on the benefits of EOLD care.
Narrative questions in the survey will give respondents an opportunity
to express in their own words the ways doulas were (or are) most
helpful to them. These questions will also identify areas of service that
can be improved as the doula role evolves in the future.
Results from the study will provide a starting point for the Council to
make recommendations on how hospices can partner with community
EOLDs or integrate doula services into existing programs. The data may
also help the Council develop new research into how doulas can most
effectively serve alongside family caregivers and hospice clinicians.
The survey will be available as of June 14, 2019 and will be open for a
period of eight weeks.
TAKE THE SURVEY ONLINE.
www.surveymonkey.com/r/DXQFBVW.
The Council will alert hospices that have an internal doula program or
who have utilized EOLDs from the community about the existence of
the survey and the need for as many responses as possible. The survey

30

Newsline / Summer 2019


http://www.surveymonkey.com/r/DXQFBVW

NHPCO NewsLine Summer 2019

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NHPCO NewsLine Summer 2019 - Intro
NHPCO NewsLine Summer 2019 - 1
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