NHPCO NewsLine Winter 2019 - 27
Alivia with her mother, two sisters, and Mickey Mouse during their magical experience in Orlando.
This trip included theme park
tickets, all meals and lodging for
the patient and their parents and
siblings, and travel
reimbursement from NHF's
Lighthouse of Hope Fund.
One of the kids who received a
grant to go to Orlando and Give
Kids the World Village was Alivia
Robinson, a 14-year-old girl under
the care of Arkansas Hospice. Her
family had limited resources and
the only trips they had taken were
for medical needs. Alivia had
never been to Orlando or even
had a family vacation. Her
hospice team said she wanted
the opportunity to just be a kid
and have some fun, and for the
family to connect with each other
and be a more "normal" family.
One of the other grant recipients
was Boston Pimpare, an eight-yearold boy receiving care from
Cranberry Hospice in
Massachusetts. His hospice team
noted that while Boston is
restricted to a wheelchair, is blind
and cannot move or speak, he
responds beautifully to music,
movement, and laughter. His two
sisters actively assist in his care, and
the family of five thrives when they
can all participate in something
together. The trip to Florida
provided that exact opportunity for
Boston and his family.
Boston's dad, Jay Pimpare, said all
three kids got to fully experience
everything together, and no one
was left out. Boston especially
loved his ride on a small roller
coaster, as he could feel the
movement and the wind in his face.
Jay also spoke highly of Give Kids
the World Village. Give Kids the
World is unique because it
provides housing, meals, theme
park tickets, and on-site
entertainment to families with a
seriously ill child. Each family has
their own villa, everything is
Alivia and her family had a blast
visiting the theme parks in
Florida, her mom Telisa Whitely
said. Alivia and her sisters rode
nearly every ride in every park,
and Alivia got to have her picture
taken with Mickey Mouse.
"It was a once in a lifetime trip,"
Telisa said. "I was very thankful."
Boston responds beautifully to music, movement, and laughter making this family experience
a special time for all.
Newsline / Winter 2019
27
https://www.nationalhospicefoundation.org/program/lighthouse-hope-fund
NHPCO NewsLine Winter 2019
Table of Contents for the Digital Edition of NHPCO NewsLine Winter 2019
NHPCO NewsLine Winter 2019 - intro
NHPCO NewsLine Winter 2019 - 1
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