NHPCO NewsLine February 2014 - (Page 32)
FHSSA | FOCUS ON COMPASSION
Quarter 1 - 2014
ICPCN and UNICEF report, continued from page 1
In his welcoming speech David Bull, Chief Executive Director of
UNICEF UK, remarked that he often hears people talking about HIV
as if we have solved the problem and don't have to do anything
anymore. He reminded those present that there are still many
aspects of HIV that still need attention.
"If we have collectively failed to prevent children from becoming
HIV positive and failed a second time in ensuring those children are
getting treatment in keeping them alive and well, what we mustn't
do is fail a third time and let these children suffer and die in pain,"
In his remarks, Craig McLure, Chief HIV/AIDS Section, UNICEF
Headquarters, added that the core mandate of UNICEF is to
protect the rights of all children everywhere, particularly those
disadvantaged and excluded.
Remarkable team effort
Joan Marston, Chief Executive of ICPCN, acknowledged all those
who had worked on the research and said that it had been a
remarkable experience and a real team effort.
Showing a map estimating the global provision of children's
palliative care services it was evident that Africa had the greatest
need. Marston went on to say that in Africa, children's palliative
care was fighting to be seen alongside many other issues, such as
poverty, and also spoke of the challenges around getting some
African countries to stock and make use of morphine for the
adequate provision of pain relief.
Results of the study
Results from the study - available for download from the ICPCN
website at www.icpcn.org - show that the need for children's
palliative care is great and is not limited to children with HIV and
cancer. At the same time, the capacity to deliver these important
services is very limited in the three countries studied and many
barriers exist to the delivery.
Recommendations by the researchers include integration of
children's palliative care services into each country's public health
systems, expansion of training in children's palliative care at all
levels, awareness raising within communities to create demand,
and the need for both governments and funders to make children's
palliative care more of a priority.
Expert Panel Discussion
An expert panel discussion on the implications of the study
was part of the event. Panel members included Joan Marston,
Dr. Cecilia Sepulveda of WHO; Dr. Bernard Mandzima, Zimbabwe
Ministry of Health; Prof. Myra Bluebond-Langner, Chair of Palliative
Care for Children and Young People, University of London; and Jo
Temple, True Colours Trust Executive.
In her remarks, Prof. Bluebond-Langner thanked the authors
for a robust and well written report that makes a contribution to
palliative care beyond Africa as many of the issues raised are not
unique to Africa.
"If we do not relieve these children's pain, we will have failed these
children and ourselves. We are nowhere near where we need to be
in the UK, in the United States, in Europe and in Africa with regard
to outcomes," Bluebond-Langner said.
In closing the meeting with a vote of thanks, Barbara Gelb, Chief
Executive Director of Together for Short Lives and Co-Chair of the
ICPCN, said how proud she was of the ICPCN and the work that
has been done in the development of this research. "Today has
been symbolic of a huge step forward in children's palliative care.
We are raising the profile right now, here, today. This research
takes us closer to where we need to be."
The full report (PDF) is available on the ICPCN website.
A longer version of this article is available on the ehospice
International Children website.
February, 2014 | 2
Table of Contents for the Digital Edition of NHPCO NewsLine February 2014
Who Says It's a Sunset?
A Message From Don
Regulatory Issues in 2014
Staying Up to Speed on the Regulatory Changes
Feedback From the Economic Impact Survey
NHF Gala - What's New in 2014 (display ad)
NHPCO 2014 Board of Directors
CTC Plenaries Now Available as Webcasts
WHV Partners in the News: Mary T Hospice
Reminder: HIS Implementation to Begin July 1
2014 MLC (display ad)
Member News and Notes
2014 Webinars (display ad)
Links to Resources on the NHPCO Website
A Feel-Good Moment
News From FHSSA
NHPCO NewsLine February 2014