Children's Hospitals Today - Spring 2017 - 14

FEATURE / HOME CARE

Bringing the
care team home
For babies with a potentially fatal congenital heart condition, a new
monitoring app is leading to better care, reduced costs and a longer life.
By Susanna Ray

W

hen Autumn Parkinson
was 26 weeks pregnant,
her doctor asked her to
come back in for another ultrasound
to make sure her baby's heart didn't
have Hypoplastic Left Heart Syndrome
(HLHS). Parkinson, who has two other

14

CHILDREN'S HOSPITAL S TODAY Spring 2017

healthy children, researched HLHS but
didn't dwell on it. "The disease was so
rare and severe that I never considered
it would be in our future," she says. "We
thought maybe they just made a mistake when viewing the ultrasound."
And then four months later, after

surgery and an eight-week stay at
Seattle Children's for her newborn,
Job, Parkinson and her husband found
themselves home in a rural area of
Tacoma, Washington, with a medically
fragile infant. Job needed constant
monitoring until his next surgery in



Table of Contents for the Digital Edition of Children's Hospitals Today - Spring 2017

Contents
Children's Hospitals Today - Spring 2017 - Cover1
Children's Hospitals Today - Spring 2017 - Cover2
Children's Hospitals Today - Spring 2017 - Contents
Children's Hospitals Today - Spring 2017 - 2
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Children's Hospitals Today - Spring 2017 - Cover3
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