Elephants And Tea - June 2020 - 35

RESEARCH

Studying
Resilience
among AYAs
BY U R ŠK A KOSI R

HELLO HERD!

It's nice to have a chance to write without having to provide a reference to
every other sentence (ugh, academic
papers)!
I am Urška, Slovenian born and
raised, but have trotted the globe
over the past decade. I am currently
stretched between the UK where I will
be completing my PhD in the coming
year, and Canada, where I hope to
continue with my professional work.
I am a young and eager researcher
who had a run in with lymphoma at
22. My background is in Psychology
and these days I primarily work with
young people who have to face cancer.
I am trying to understand how young
people cope with the challenges associated with cancer.
The aim of this post is to give you a
brief introduction to me, and invite
you to take part in my online study
(http://tiny.cc/oxford_study), which
you can do from the comfort of your
sofa, as long as you have a laptop,
WIFI, and 20-min worth of time!

Historically, efforts have been placed
on survivorship, and mental aspect
of cancer care was resultantly often
ignored.
We are making great progress in
raising awareness of the many difficulties, challenges and needs that
young people with cancer face. Research is key to innovation and novel
approaches to care.
Mental health matters.
Mental health impact of cancer
can be bigger than the physical aspect of it.
Mental health aspect of cancer
needs to stop being a taboo.
HOW WILL YOU BENEFIT?
Well, participating in the study offers
no direct benefit to you. However,
you may opt into a draw for voucher
prizes for up to $150 (or a preferred
equivalent).
Nevertheless, we hope that you will
find some meaning by participating
and providing your thoughtful responses, which will lead to invaluable
insights that can inform the care for
individuals like you in the future.

Conversation

It is very important to me and my
team that the work we do finds its way
back to the patient communities! This
way we can all benefit and learn.
PRELIMINARY RESULTS
I am an advocate for open and accessible science, if not, what's the point!?
I believe it is important to share
findings, no matter how small, and
communicate the results in an understandable fashion without misrepresenting the numbers.
I also believe that participating in
research becomes fun when one can
see and understand the results. To
tease you, here are a few lovely graphs
that summarize some of the responses
we received this far!
These are real answers, from the
on-going study in which you can still
participate!
Graph #1 - CANCER-RELATED WORRY
Young people who experience cancer
may experience worries related to their
health and illness. These worries are
common and do not predict mental
health problems. In fact, though the
LABELS EXPLAINED:
* Have children = worry about
having children in the future;
* Late effects = worry about
experiencing late effects related
to treatment;
* New cancer = worry about receiving a new cancer diagnosis;
* Relapse = worry about their
cancer coming back;
* Back of mind = cancer being
always at the back of their mind;
* Every day = worry about cancer
every day

WHY IS THIS RESEARCH
IMPORTANT?
Psycho-social oncology is a relatively
young field and often overlooked.
ELEPHANTSANDTEA.COM
JUNE 2020

35


http://www.tiny.cc/oxford_study http://www.elephantsandtea.com

Elephants And Tea - June 2020

Table of Contents for the Digital Edition of Elephants And Tea - June 2020

Contents
Elephants And Tea - June 2020 - Cover1
Elephants And Tea - June 2020 - Cover2
Elephants And Tea - June 2020 - 1
Elephants And Tea - June 2020 - Contents
Elephants And Tea - June 2020 - 3
Elephants And Tea - June 2020 - 4
Elephants And Tea - June 2020 - 5
Elephants And Tea - June 2020 - 6
Elephants And Tea - June 2020 - 7
Elephants And Tea - June 2020 - 8
Elephants And Tea - June 2020 - 9
Elephants And Tea - June 2020 - 10
Elephants And Tea - June 2020 - 11
Elephants And Tea - June 2020 - 12
Elephants And Tea - June 2020 - 13
Elephants And Tea - June 2020 - 14
Elephants And Tea - June 2020 - 15
Elephants And Tea - June 2020 - 16
Elephants And Tea - June 2020 - 17
Elephants And Tea - June 2020 - 18
Elephants And Tea - June 2020 - 19
Elephants And Tea - June 2020 - 20
Elephants And Tea - June 2020 - 21
Elephants And Tea - June 2020 - 22
Elephants And Tea - June 2020 - 23
Elephants And Tea - June 2020 - 24
Elephants And Tea - June 2020 - 25
Elephants And Tea - June 2020 - 26
Elephants And Tea - June 2020 - 27
Elephants And Tea - June 2020 - 28
Elephants And Tea - June 2020 - 29
Elephants And Tea - June 2020 - 30
Elephants And Tea - June 2020 - 31
Elephants And Tea - June 2020 - 32
Elephants And Tea - June 2020 - 33
Elephants And Tea - June 2020 - 34
Elephants And Tea - June 2020 - 35
Elephants And Tea - June 2020 - 36
Elephants And Tea - June 2020 - 37
Elephants And Tea - June 2020 - 38
Elephants And Tea - June 2020 - 39
Elephants And Tea - June 2020 - 40
Elephants And Tea - June 2020 - 41
Elephants And Tea - June 2020 - 42
Elephants And Tea - June 2020 - 43
Elephants And Tea - June 2020 - Cover3
Elephants And Tea - June 2020 - Cover4
https://www.nxtbookmedia.com