Elephants and Tea: Hodgkin Lymphoma Issue 2021 - 28

Advocacy Guide
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WHAT SHOULD I BE LOOKING FOR IN A CANCER TREATMENT CENTER,
ONCOLOGIST, AND CARE TEAM?
Hodgkin lymphoma, like all cancers, requires specialized treatment. After your diagnosis, you will need to choose the team who
will manage your cancer care. It's important to find a treatment center and providers who help you learn about your treatment
options, answer all your questions, and allow you to partner with them in treatment decision-making. 7
Your oncologist and members of your care team should also be able to help you navigate the emotional impact of Hodgkin
lymphoma on you and your loved ones, directing you to resources or advocacy organizations that provide patient support through
treatment. 7
It's possible that your initial care team may not be a good fit for you and your personal treatment goals. If you feel like your visits are
rushed, or your providers aren't listening to you or answering your questions sufficiently, there are often ways to make things better.
Try to be as honest and open as you can about your concerns and see if you are able to work through them with your team. 7
If you are unable to build a trusting relationship with your oncologist and care team, you may want to consider finding a new
doctor or treatment center that feels right for you. 8
WHY IS IT IMPORTANT FOR ME TO TAKE AN ACTIVE ROLE IN MY TREATMENT
DECISION?
Each Hodgkin lymphoma treatment plan is individualized based on your prognosis, stage, and goals. Your doctor and care team
will help inform you about your treatment options, but since there is a lot of information about Hodgkin lymphoma treatments
available from various resources, it's important to ask questions and collaborate with your doctor and care team on what will be the
best fit for you. 8
WHAT SHOULD I DO IF I'M STRUGGLING TO ADVOCATE FOR MYSELF DURING
TREATMENT DECISION-MAKING?
Effective communication with your doctor is the best way to make sure you're getting the information you need to make an
informed treatment decision.
To make communicating with your doctor easier, consider writing down your specific questions in advance, recording your
conversations, keeping copies of your medical records, and trying to speak up when you don't understand something your doctor
may be telling you. If you feel comfortable sharing your medical information with a friend or family member, bring them along to
your appointments to take notes or ask questions on your behalf. 8
WHAT RESOURCES CAN I USE TO HELP MAKE AN INFORMED TREATMENT
DECISION?
Many advocacy organizations offer programs and services to help you throughout your diagnosis, treatment decision-making, and
during treatment. Having open conversations with your doctor and care team will allow them to share tailored resources that will
help you become knowledgeable and confident about your treatment options.
You can also find resources on Hodgkin Hub19, The Leukemia & Lymphoma Society20
Foundation22
to help you navigate treatment decision-making.
, Cancer.Net,21 and Lymphoma Research
VISIT HODKGINHUB.COM
ELEPHANTSANDTEA.COM
HODGKIN LYMPHOMA ISSUE 2021
TO HEAR STORIES AND EXPERIENCES FROM PEOPLE FACED WITH A HODGKIN LYMPHOMA
https://www.hodgkinhub.com/resources/ https://www.lls.org/lymphoma/hodgkin-lymphoma/treatment https://www.cancer.net/navigating-cancer-care/how-cancer-treated/making-decisions-about-cancer-treatment https://www.lymphoma.org/aboutlymphoma/hl/ https://www.lymphoma.org/aboutlymphoma/hl/ https://www.hodgkinhub.com/ http://www.ELEPHANTSANDTEA.COM

Elephants and Tea: Hodgkin Lymphoma Issue 2021

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Elephants and Tea: Hodgkin Lymphoma Issue 2021 - Cover1
Elephants and Tea: Hodgkin Lymphoma Issue 2021 - Cover2
Elephants and Tea: Hodgkin Lymphoma Issue 2021 - 1
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