What Do I Do Now? - 11

11
WHAT THE C?!? /// CHAPTER 8
Be sure to ask for
clarification.
Don't be afraid to ask people to
repeat things - if you did not
understand the first time (or the
second time or the hundredth time).
It's ok. Everyone knows this is a lot of
new information. There will be words
you've never heard before thrown at
you. Speak up for yourself!
Make sure to process
the answers to your
questions
It's easy to get caught up in your
own thoughts or move on to the
next question as your provider is
answering the first question. If
you need a moment to process, let
them know. Repeat the information
back to the provider to ensure you
understand. Keep asking follow up
questions if you and the provider
aren't on the same page.
Think about your
preferred learning style.
Many people are visual learners and a
picture, or a diagram might really help
you understand. There will be a lot of
information so even if you think you
will remember the answers, write the
info down.
Don't be afraid to bring
someone
It helps to bring a family member or
friend to have a second set of ears
in the room - then check with each
other and fill in the gaps if some info
is missing. This support person can
also help you process the information
you are gathering.
You could also ask your doctor if it's
ok to voice record the questions and
answers (you can even do so on most
phones).
Ask for quality
resources, education and
support
Do you want internet addresses/
links? Printed education material? Inperson
support groups? One-on-one
counseling? Virtual support groups?
Before leaving any
appointment
Be sure you get everyone's business
card or at least their contact info so
you know who to contact in the future
for further questions or concerns.
Make sure you understand what you
need to do next before leaving. This
includes follow-up appointments,
labs and procedures, treatments to
follow, forms to turn in, medication
instructions and more. Sitting down
with a treatment calendar frequently
throughout treatment can really
help, but be aware schedules and
dates can change, which is why it is
important to check in regularly.
If you go see another provider be
sure to update your Oncology team of
any new medications, procedures or
diagnoses (even if you don't think it's
relevant).
" Don't be afraid
to speak up and
self-advocate! "
https://fwaya.org/

What Do I Do Now?

Table of Contents for the Digital Edition of What Do I Do Now?

Contents
What Do I Do Now? - 1
What Do I Do Now? - Contents
What Do I Do Now? - 3
What Do I Do Now? - 4
What Do I Do Now? - 5
What Do I Do Now? - 6
What Do I Do Now? - 7
What Do I Do Now? - 8
What Do I Do Now? - 9
What Do I Do Now? - 10
What Do I Do Now? - 11
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