PKD Life - Spring 2020 - 16

To Disclose or
Not to Disclose
Weighing the decision to tell
others about your PKD.
By Christina Frank

D

GERALDINE SY/GOODILLUSTRATION.COM

eciding whether to tell people you have PKD
is a personal decision. People may keep their
diagnosis to themselves for various reasons, such
as not wanting to worry their kids or fearing they
may not be eligible for certain insurance plans.
On the other hand, "if people are comfortable talking
to others about their condition and it provides them
comfort or additional support, then that may outweigh
the potential downsides for them," says Rachel Full, M.S.,
C.G.C., a genetic counselor at NorthShore University
HealthSystem in Chicago. "But I think it's also good to
be educated about the types of discrimination that can
occur so that people are prepared and know about the
potential worst-case scenarios."
On the next page, three women with PKD share how
they made their decisions.

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PKD Life - Spring 2020

Table of Contents for the Digital Edition of PKD Life - Spring 2020

Contents
PKD Life - Spring 2020 - Cover1
PKD Life - Spring 2020 - Cover2
PKD Life - Spring 2020 - Contents
PKD Life - Spring 2020 - 2
PKD Life - Spring 2020 - 3
PKD Life - Spring 2020 - 4
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PKD Life - Spring 2020 - Cover4
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