PKD Life - Spring 2020 - 29

BREATHE

"We check on one
anot her, share
test ing results,
and provide
a litt le
insight into
our personal
lives. I love
my kidney
peeps!"

e * Following

adpkd_and_m

ay!!
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This 50oz of wa cup? Make sure
ur
11. What's in yo r in (unless you
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you get that wa . Stay hydrated!!!!
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have restriction cystickidneydisease
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#p
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kd
#h
rque #water #p
#tolvaptan #jyna s #thermos #yeti
ey
#endpkd #kidn yhydrated #thirsty
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#staypositive #s #bloodpressure #ckd
ay
#thirstythursd

35w
48oz 2x/day,
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then a little mor
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July 11

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t...
Add a commen

My
PKD Story

STARTED
WHEN I FIRST
I was so afraid
n,
ta
ap
taking tolv
ew life" would
of what my "n
d
's why I decide
look like. That
t
ac
ld
ou
w
ge that
to create a pa
ith
w
e
os
th
r
fo
e"
as a "safe spac
ith
for someone w
PKD or caring
ur
yo
re
he
w
e days
PKD. There ar
re
u'
yo
g,
in
bb
ro
kidneys are th
u feel like the
so tired, or yo
a
cks. My page is
disease just su
ity
un
D comm
place for the PK
of
ghs and lows
hi
e
th
s
us
to disc
the disease.

g
D, and growin
y father had PK
a
ght it was
up, I just thou
d in my
d.
d ha I learne
disease my da
and that
as hereditary
teens that it w
-50
ildren had a 50
my father's ch
Fastng the disease.
chance of havi
ar-old
, when my 7-ye
forward to 2011
that
nt
ground accide
son had a play
ng
vi
overy of his ha
led to the disc
id it was
rology team sa
PKD. The neph
had it and
y dad and son
unlikely that m
being
r
r that year, afte
I did not. Late
high blood
diagnosed with
ultrasound
an
pressure, I had
DDERMAN
I, too,
at
th
CYNTHIA FE
that confirmed
rginia
Vi
d,
Richmon
had PKD.
and_me
d_
pk
ad
@

M

MY ADVICE
on the
Stay educated
more you
condition. The
you are
e
or
know, the m
ptoms or
m
sy
r
fo
ed
prepar
d the more
an
,
appointments
te for your
you can advoca
health.
(or your child's)
mmunity
co
e
Join an onlin
g a support
for PKD. Havin
portant, espe
group is so im
e
ar
sh
n
ca
u
yo
cially when
d compare
how you feel an
understand.
ho
with people w
u don't
, as long as yo
Stay hydrated
.
d restrictions
have any liqui
D really
. Yes, having PK
ve
ti
Stay posi
e feelings
owledge thos
stinks, but ackn
day and
a
es
an 15 minut
for no more th
oving!
then keep it m

*

F I N D R E S O U R C E S N E A R Y O U AT P K D C U R E .O R G / C H A P T E R S

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PKD Life - Spring 2020

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