COVER: PHOTO ILLUSTRATION BY STEPHANIE DALTON COWAN, CLOCKWISE FROM TOP: PHOTOGRAPHY BY RYAN WENDLER, ANGELO MERENDINO, AND BILL PURCELL. FEATURES CONTENTS 13 Our PKD Life The Renis, of Winter Haven, Florida, are one of three families who shared their ARPKD journeys. 18 Advocating from the Heart How to ensure children with ARPKD get the care and support they need. Weighty Matters A recent study suggests that losing excess pounds can slow the progression of kidney growth. 20 PKDCURE.ORG 1http://www.PKDCURE.ORG