PHA Pathlight Spring 2014 - (Page 41)
interview with Brook and Kenzie Clasby
rooklyn is 7 years old and has pulmonary hypertension. Her sister, Kenzie,
came along for her PH checkup at Seattle Children's Hospital recently. We
asked the girls about their experiences.
Brooklyn, who is 7, talks about bringing her sister along.
How did you feel about Kenzie coming along to your checkup?
I felt excited to have my sister come along. I wanted her to meet all my favorite
nurses and doctors, and I was really excited to put all my EKG stickers on her.
Was there anything you especially wanted Kenzie to understand better
about your PH? Did her visit help that?
I really wanted Kenzie to understand more about everything I have to go through when
I go to the doctor. She got to see all the tests that I have to do, so now she knows
what I am talking about.
What would you like to tell other kids who are living with PH?
I would like to tell other kids with PH to never stop trying to do the things they love.
Even though I am not able to run, I find happiness in doing other activities like rock
climbing, playing golf and drawing.
Kenzie, who is 9, shares what it was like to go to her sister's checkup.
Brook (right) and her sister
Kenzie at Brook's checkup
Why did you decide to go with your sister for her PH checkup?
I wanted to go to Brook's clinic appointment because I have never been before. I
always feel worried about her. I wanted to understand more about the tests she has
to do when she goes there.
What did you learn about PH by visiting the clinic?
I learned how busy clinic days are. Brook went from one test to another to another.
They look at so many different things.
What was the most interesting part of the day?
I thought the most interesting part of the day was her ECHO. I was amazed to see
her heart up on a screen. I also liked watching her do her exercise test.
Was there anything you didn't understand before that you do now
because of your visit?
Before my visit to the clinic, I was always afraid that Brook and my parents were
going to go to the hospital and not come home for a long time. Now I understand that
clinic visits are just to check on how Brook is doing and aren't always an emergency.
Interview continued on next page
PATHLIGHT SPRING 2014
Patient-to-Patient Support Line: 1-800-748-7274
Table of Contents for the Digital Edition of PHA Pathlight Spring 2014
Coping with PH
Ask a PH Specialist
Advancing the Cause
PHA Pathlight Spring 2014