Pathlight Summer 2016 - (Page 40)

ADVANCING THE CAUSE CHAPTER NEWS CALIFORNIA CHAPTER On March 13, the 2016 Northern California O2 breathe Walk met great success. We were excited to have Kathleen Sheffer as the honoree, an exceptional individual whose contributions to the pulmonary hypertension community have been remarkable. Kathleen lives in San Francisco, Calif., and works as a freelance photographer (, accompanied by her ten-pound black Shih Tzu, Basil. She was diagnosed with pulmonary hypertension at the age of six. When you meet Kathleen she is someone you immediately admire. She constantly finds new ways to challenge herself and will make you want to do the same. While finishing her last semester of college and completing a thesis at UC Berkeley, she joined us for the 2015 San Francisco O2 breathe Walk as captain of Team Kathleen. Team Kathleen has raised more than $13,000 to date and was the top fundraising team for both the 2015 and 2016 O2 breathe Walks at Golden Gate Park. When asked to describe her motivation to fundraise, Kathleen stated, "Fundraising for PHA has always been a rewarding experience for my family. Each time we do a fundraiser I feel revitalized after seeing how extensive my support system is. It's a win-win-win situation for me. I help raise money for PHA, I spread awareness in my community, and my friends become more educated and prepared to deal with what the disease throws at me next." Kathleen Sheffer Kathleen's support of PHA is not limited to her amazing fundraising efforts. She promotes awareness of PH at every opportunity and is a leader in motivating other PH patients to live their lives to the fullest. She definitely leads by example - her zest for life is an inspiration to all. For information on upcoming California Chapter events please visit,, email inquiries to or call 415-361-8700. LONE STAR CHAPTER More than 4,500 people gathered in The Woodlands, Texas, on April 2 to enjoy a regional delicacy and show their #Heart2CurePH at an event benefiting PHA. PHA President and CEO Rino Aldrighetti was among those in attendance. The BB&T Woodlands CrawPHish Festival was created as a community partnership between PHA and The Woodlands Area Chamber of Commerce. Festival guests enjoyed live music, special activities for kids and authentic Louisiana crawfish. This year, five tons of crawfish were prepared to feed the crowd at the 2016 Festival. Since 2008, the event has raised more than $2 million for PHA. The festival was founded by Board Member Jack Stibbs, whose daughter Emily was diagnosed with pulmonary hypertension at the age of five. The Stibbs family has remained dedicated to the cause of encouraging new medical research and raising awareness for early diagnosis of PH. 40 PATHLIGHT // SUMMER 2016 BB&T Woodlands CrawPHish Festival

Table of Contents for the Digital Edition of Pathlight Summer 2016

Message from the Chair
Message from the SLC Chair
Quick Takes
PHenomenal Lives
Family PHocus
A Day in the Life of a PH Physician
Research Corner
GO PHAR Research
Ask the Expert: Post-PE Monitoring
End-of-Life Conversations: Tough Questions & Important Answers
Lantos Highlight
Conference & Leadership Changes
Chapter News
Advocacy PHact or PHiction? Test Your Knowledge of PH Advocacy
Calendar of Events
Question of the Quarter:

Pathlight Summer 2016