NHPCO NewsLine Fall 2020 - 33
Highlighting the Value of Pediatric Hospice & Palliative Care
A new video from the My Hospice Campaign
In June of 2020, NHPCO
released a new video for the
My Hospice campaign called
My Support, My Hospice:
Nathan's Story. The video
features a family from
Buffalo, New York. Two-year
old Nathan Pitillo and his
parents Greg and Becky are
receiving care from Hospice
and Palliative Care Buffalo
and are supported through
the program's Essential
Care for Children. The video
showcases the vital
necessity for pediatric
hospice and palliative care services and the need
to support this unique patient demographic.
Nathan was born with microcephaly, a congenital condition associated
with abnormal brain development. He was also diagnosed with
lissencephaly, a rare brain disorder. He began receiving hospice services
through Hospice and Palliative Care Buffalo immediately following his
birth. While under their care, Nathan's condition stabilized, and he was
moved to palliative care. He and his family continue to receive nursing and
social work visits and utilize the program's expressive therapy services
including music and massage therapy.
In the video, viewers get a glimpse of the wide variety of care and services
Nathan receives. Licensed Massage Therapist Jane Hunt sits with Nathan
and massages his legs and arms stimulating his muscles and bringing him
comfort. Music Therapist Gina Schuster tells a story about Nathan
responding to a drum she brought to a music therapy session.
Nathan's parents are incredibly grateful to Hospice and Palliative Care
Buffalo and believe that through the program's support, they were able to
bring Nathan home and care for him.
"I think that a pediatric hospice program is incredibly important because
without it, I honestly don't think that we would've been able to take Nathan
home at two weeks of age and be comfortable enough and confident
enough in ourselves to take care of him properly," says Becky Pitillo. "I think it
empowers you as a parent, you
know the diagnosis, but having
somebody there to walk you
through everything gives you the
strength to work through it and
give him the best life that he can
have."
NHPCO is committed to improving
access to hospice and palliative
care for children who are seriously
ill. NHPCO's Pediatric Advisory
Council includes members who are
experts in pediatric hospice and
palliative care. They provide
strategic guidance to the
organization about this specialized
delivery of care and produce several
resources including the Pediatric
E-Journal, pediatric hospice and
palliative care educational
offerings, and the Pediatric
Standards of Care for Hospice
Programs. Learn more about
NHPCO's pediatric resources.
The video
showcases the vital
necessity for
pediatric hospice
and palliative care
services...
Newsline / Fall 2020
33
https://www.nhpco.org/pediatrics/
NHPCO NewsLine Fall 2020
Table of Contents for the Digital Edition of NHPCO NewsLine Fall 2020
AXXESS Hospice (display ad)
Table of Contents
Virtual Interdisciplinary Conference (display ad)
Edo's Message
FY2021 Hospice Wage Index (feature article)
Virtual Conference Thank You (display ad 1/2 page)
Q&A on Election Statement
Quality Care in the time of COVID-19
Quality Connections
NHPCO Releases Facts & Figures Report
Seeing the World
NHPCO Career Center (display ad 1/2 page)
Weatherbee Resources (display ad 1/2 page)
NHF Gala Sponsor Thanks
Virtual Gala Recap
Highlight Value of Pediatric Care
State Pediatric Survey - Data Collection
We Honor Veterans Spotlight
New Courses Ondemand
New Podcast
Lighthouse of Hope (display ad 1/2 page)
Diversity Advisory Council Paper
AXXESS Hospice (display ad #2)
back cover
NHPCO NewsLine Fall 2020 - intro
NHPCO NewsLine Fall 2020 - 1
NHPCO NewsLine Fall 2020 - AXXESS Hospice (display ad)
NHPCO NewsLine Fall 2020 - Table of Contents
NHPCO NewsLine Fall 2020 - Virtual Interdisciplinary Conference (display ad)
NHPCO NewsLine Fall 2020 - Edo's Message
NHPCO NewsLine Fall 2020 - FY2021 Hospice Wage Index (feature article)
NHPCO NewsLine Fall 2020 - 7
NHPCO NewsLine Fall 2020 - 8
NHPCO NewsLine Fall 2020 - Virtual Conference Thank You (display ad 1/2 page)
NHPCO NewsLine Fall 2020 - Q&A on Election Statement
NHPCO NewsLine Fall 2020 - 11
NHPCO NewsLine Fall 2020 - 12
NHPCO NewsLine Fall 2020 - 13
NHPCO NewsLine Fall 2020 - 14
NHPCO NewsLine Fall 2020 - 15
NHPCO NewsLine Fall 2020 - Quality Care in the time of COVID-19
NHPCO NewsLine Fall 2020 - 17
NHPCO NewsLine Fall 2020 - 18
NHPCO NewsLine Fall 2020 - 19
NHPCO NewsLine Fall 2020 - Quality Connections
NHPCO NewsLine Fall 2020 - 21
NHPCO NewsLine Fall 2020 - NHPCO Releases Facts & Figures Report
NHPCO NewsLine Fall 2020 - 23
NHPCO NewsLine Fall 2020 - 24
NHPCO NewsLine Fall 2020 - 25
NHPCO NewsLine Fall 2020 - Seeing the World
NHPCO NewsLine Fall 2020 - 27
NHPCO NewsLine Fall 2020 - 28
NHPCO NewsLine Fall 2020 - 29
NHPCO NewsLine Fall 2020 - Weatherbee Resources (display ad 1/2 page)
NHPCO NewsLine Fall 2020 - NHF Gala Sponsor Thanks
NHPCO NewsLine Fall 2020 - Virtual Gala Recap
NHPCO NewsLine Fall 2020 - Highlight Value of Pediatric Care
NHPCO NewsLine Fall 2020 - State Pediatric Survey - Data Collection
NHPCO NewsLine Fall 2020 - We Honor Veterans Spotlight
NHPCO NewsLine Fall 2020 - New Courses Ondemand
NHPCO NewsLine Fall 2020 - Lighthouse of Hope (display ad 1/2 page)
NHPCO NewsLine Fall 2020 - Diversity Advisory Council Paper
NHPCO NewsLine Fall 2020 - AXXESS Hospice (display ad #2)
NHPCO NewsLine Fall 2020 - back cover
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